March 28, 2007

On advice from the Patient Liaison at the Homerton, I called my GP to ask her to contact the PCT on my behalf. So I rang Dr Lam this morning and was, fortunately, able to speak to her. She was surprised that my funding hadn't been taken care of already. I didn't tell her that had the &$#@ person at the hospital not forgotten/lost my application that we might be further along.

She said she would find out who at the PCT was handling my case and give them a call. Hopefully that will be helpful.

I'm tired of waiting.

March 19, 2007

On a whim, I called the patient liaison at the Homerton today. She actually knew who I was! I think I've gotten so used to being a nobody and just a number that I'm actually taken aback when someone acts like they know me and/or my case. Funny that.

Relatively calm but semi-good news is that I'm on the list to be discussed at the end of the month. This is where the multi-disciplinary team gets together to talk about upcoming cases as well as their funding. So keep your fingers crossed (are they starting to cramp yet, having been crossed for eight months?)!

Eight months. Well, at least there continues to be (ever so slow) progress. All I know is that I'm more ready than ever to get things on the road. I'm taking this medicine for my stupid overactive thyroid (who ever heard of a fat lady with an OVER active thyroid) and they've confirmed it's not helping against my battle of the bulge.

Don't get me wrong, the pie I had yesterday isn't either - but the medicine is at least a tiny part of my excuse.